Our group has an abiding commitment to help improve the lives of children with complex chronic conditions (CCCs) and their families.
For certain research studies, we have needed to identify children with CCCs in large datasets that contain lists of diagnoses for each child.
Below are links to statistical packages that will essentially examine all the diagnoses listed for a child and specify whether or not the child has any type of CCC diagnosis and then what specific category or categories of CCC diagnoses are listed. These packages are now available in Stata, SAS, and R (which was developed by collaborators at the University of Colorado). The packages will work for both diagnoses listed in either the ICD 9 or the ICD 10 nomenclature.
Here is the Stata code for CCC Version 2
Here is the Stata code for CCC Version 2
Here is a link to the GitHub site where the R code for CCC Version 2 can be found
Go To SiteLastly, here are some key references regarding the CCC classification system:
Feinstein JA, Russell S, Dewitt PE, Feudtner C, Dai D, Bennett TD. R Package for Pediatric Complex Chronic Condition Classification. JAMA Pediatrics (in press).
